We have held three successful family support days in London, our most recent family support day was Saturday 21st April 2018. This was a chance to hear guest speakers, meet other people affected by Dyskeratosis Congenita and learn new information about the condition.
Our 2020 family support day unfortunately had to be cancelled due to Coronavirus, however we are in the process of rearranging. We would like to include any specific areas that are of interest to attendees, therefore please let us know if there are any topics which you would like to be included in the family support day programme. Similarly if there are any topics which you would like to be added to the website, please let us know!