OUR MISSION

We are a small charity registered in 2007 which aims to bridge the gap and offer support, education and understanding for anyone who is involved in this complex condition.

What are our aims?

• Provide support

• Provide education (for individuals, families, carers and health care professionals)

• Produce leaflets about the condition

• Provide updated information via our website

• Provide further details about the Trust

AIMS OF 2020

• Support research into Dyskeratosis Congenita.

• Organise a  Family Support day.

• Develop a new information leaflet for Health Care Professionals, Carers and Individuals affected by Dyskeratosis Congenita.

• Develop a new children’s leaflet

• Fundraise

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If you have any suggestions, please contact us!