We are a small charity registered in 2007 which aims to bridge the gap and offer support, education and understanding for anyone who is involved in this complex condition.
What are our aims?
Provide education (for individuals, families, carers and health care professionals)
Produce leaflets about the condition
Provide updated information via our website
Provide further details about the Trust
AIMS OF 2020
Support research into Dyskeratosis Congenita.
Organise a Family Support day.
Develop a new information leaflet for Health Care Professionals, Carers and Individuals affected by Dyskeratosis Congenita.
Develop a new children’s leaflet
If you have any suggestions, please contact us!