Welcome to The Gary Woodward Dyskeratosis Congenita Trust website. This charity was founded in 2004 in memory of Gary who suffered with Dyskeratosis Congenita and set up to support people who are affected in any way by this condition.

Unfortunately our Family Support Day on Saturday  25 April, 2020 was cancelled, due to Covid-19.

Dyskeratosis congenita is a severe bone marrow failure syndrome which is a genetic condition, affecting children and adults.


The Trust hopes to bridge the gap and offer support, education and understanding for anyone who is involved in this complex condition.


We are a small charity and would welcome any input from anyone who is interested in becoming involved.


Although great care has been taken to produce this website, to ensure accuracy The Gary Woodward Dyskeratosis Congenita Trust cannot accept responsibility for any errors or omissions. 
Any medical information is provided for educational/ information purposes only –you should obtain further information from your medical practitioner.